Thursday, June 11, 2015

Carly's CBD Treatment Placed on Hold

Cell phone rings today, I answer. Amy is on the line and tells me Carly has been taken off of CBD completely until further notice. It is hard to describe the emotion that rushed through me, but I can tell you it wasn't a good feeling. All the progress she has made is now in jeopardy all due to a rash. I wanted to cry but couldn't because all I could think about is that this couldn't be happening, but it is.

The doctors are taking Carly's safety and health into consideration by taking her off CBD since the rash was slightly worse this morning. Removing her may or may not be permanent. We wont know until we find out what the source of her rash is. At this point, it is anyone's guess. We've had countless opinions on what it might be and we are looking into every suggestion that has been given to us. There is still the chance this is a fluke or a strep rash and she is placed back on CBD in the future. 

Not much more I can say. Praying better news is coming our way. 

God Strong.


  1. So sorry. Can they consider putting her on CBD in olive oil? Or will that violate the terms of the study?

    1. That is not possible because the study is look at Epidiolex. There are many different suspensions, I agree.

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